Autism. Autism. Autism.
I know what it is in my home. I know how it affects my child. I am an expert of autism, but only for my son. I am not an expert for others. I am an advocate for my son. I am an advocate for others as well. I am educated and professional but I am not an expert on autism around the globe but rather only in my home. My part of the spectrum. The world we live in. Autism is different in every child. It is a wide spectrum with varying degrees. I know what autism is like in our home. I know what a melt down is. I know what a sensory over load is. I know what may provoke stimming, in my home. Yes, there may be many characteristics that autistic children share such as lining up toys and objects, flapping etc.That is only the tip of the iceberg. Autism is a puzzle. Where does it come from? Where is it going? Autism is a word, it is not a sentence. It changes lives. It brings new perspectives. Autistic children can teach us so much if we let them and we should. I am very lucky to have first hand experience with autism, that is not anything that I could ever learn in school. My undergraduate degree is Child Studies and I had a course on Teaching the Exceptional Child but it is nothing like living with autism all day every day. I know children. I know autism but I am only an expert with my ASD son. I can give advice. I can get to to the right sources and feel confident in doing so. You know your child, you are the expert on autism in your home. Do not let a doctor tell you differently. We can share autism stories and find out we have many similarities but our children are unique, our gift from God.Jorge Juan is my piece to the autism puzzle and I would not have it any other way.
An autism diagnosis is just that. It is what we do right after that,that counts.It is moving forward with hope.Do not let anyone stop you. I am my son’s advocate, his voice. I will use my voice until I no longer can to stand up for his rights. I hope you do the same and never let anyone make you think twice about the capabilities that your child may possess.Remember you are the expert for your child, not a doctor. Never let a doctor convince you that your child needs to be place don medication just from their brief visit with them. Never. I remember when the neuro wanted to put my son on meds because my son was having a meltdown in his office. Not one type but two!1 I said no way, never. I will explain my child to the world if need be. Ask me questions, do not ignore him, do not stare. Yes, he flaps, stims, repeats, etc and the whole nine yards. So what!! You know what else he does? He wakes us up saying I love you Mommy, I love you Daddy. He tells us he love us all day randomly. He loves to cuddle, snuggle and he loves and believes in God. That is what counts, autism does not.
An autism diagnosis is not the end of the world, it is just the beginning of a whole new world waiting to be explored. Go for it, you will be glad you did. Never let an autism diagnosis kill your hopes and dreams for your child, I know I did not and never will. He already wants to be a cowboy, astronaut and whatever else his heart desires. My little puzzle piece fits wherever he believes that he belongs.
Autism. Autism. Autism.