My Boy: part 2

Okay, this is part 2..go ahead and read part 1 if you have not done so already..


So, on August 9, 2011, we take my son to the doctor for his 3 year annual visit. I already had my questions in mind for the doctor. I was there with a diagnosis and did not actually want her to confirm it, but I just knew. I mean he was showing all the signs and symptoms of Autism and I was advancing more in my Teaching the Exceptional Child class – it was all right there in front of me. The stimming, flapping, running, not hearing, not talking. He was still in diapers at the time and was in diapers /pull ups until he was 4.5 years old.

Okay, so we enter the office and you know the doctor asks how your child has been in the last year. And there I go, “Dr. Small, my son has autism, I mean I think,  you know, this is what he does and this is what is happening…..”

As she takes out that white note pad, she is jotting down something as I am telling her all of the ASD signs…so then she hands me the note and it says Autism Spectrum Disorder- pending other evaluations such as audiologist, neurologist etc. She told me and was just nodding her head as I was telling her that I think my son is deaf and so on…

Clarification but still at that moment my heart was broken for my son and I went home to call my husband..and he came home from work. I cried for a day but we searched and kept moving forward looking for answers.

Okay so he has a speech delay and the audiologist says he was not hearing at the right decibels but he was not deaf but only hearing 20 percent..I do not exactly remember but anyway as a baby he had many ear infections. So after that we took him to an ENT maybe about a week later, he had water in his ears and was not hearing well and that is part of the reason he was not speaking- see as he was showing all signs of ASD.

It was going on the end of August and my son was about to start his first year of pre kindergarten..I was worried because he could not talk. He could not tell you his name but we kept our faith as early childhood education is vital. Also his primary doctor said because of his diagnosis he would be eligible for therapies provided by the Board of Education. Okay so that is great.

We moved fast, we took him to a neurologist, and after intense screening, this doctor said he has Autism Spectrum Disorder and is in the middle range of the scale. At that time my son could not stack blocks or follow the directions from the doctor…

The neurologist was saying that maybe he could be having seizures because the way that my son would stop things and intensely focus for about 20 to 30 seconds at a time and also because of the movements he would make due to excitement etc. So from there we were sent to have EKG and MRI done…all of this within a few weeks before he was about to enter school. Exciting, school- pre K- I love it!!! And going through of all of this deepened my passion as I just knew that education is my field.

No one was going to stop us. Our son needs advocates. If he could not talk at the time, we indeed are going to be his voice.So what are we to do with all of this???

(stay tuned for part 3)

Comments and Questions are always welcome ; )

Thank you!!!


Posted in JJ

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